Book Recommendations
(from Chicago EDS members)
(Always in progress! In order by title at this time. Let us know below if you want to submit a title for this list.)
Fiction:
- The Chemistry Test (Georgina Frankie) (Disability Rep, EDS, Dysautonomia)
- It's All In Your Head (Sabina Nordqvist) (Disability Rep,Dysautonomia, IIH, Chronic Pain, mention of EDS, ME/CFS, Fake Relationship to Real Thing Romance Trope)
Nonfiction:
- Adult Children of Emotionally Immature Parents: How to Heal from Distant, Rejecting, or Self-Involved Parents (Lindsay C. Gibson)
- The Anti-Ableist Manifesto: How to Build a Disability-Inclusive World (Tiffany Yu)
- Bottle of Lies: The Inside Story of the Generic Drug Boom (Katherine Eban)
- Brilliant Imperfection: Grappling with Cure (Eli Clare)
- ChronicBabe 101: How to Craft an Incredible Life Beyond Illness (Jenni Grove)
- Disability Intimacy: Essays on Love, Care, and Desire (edited by Alice Wong)
- Disability Visibility: First-Person Stories from the Twenty-First Century (edited by Alice Wong)
- Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (Edited by Diana Jovin)
- Dying Well: Peace and Possibilities at the End of Life (Ira Byock, MD)
- EDS Word Search: Word Searches with Easy to Read Print all about Ehlers-Danlos Syndrome, aka EDS, a group of genetic connective tissue disorders (Joy Wordsmith)
- Floppy: Tales of a Genetic Freak of Nature at the End of the World (Alyssa Graybeal)
- The Future Is Disabled: Prophecies, Love Notes and Mourning Songs (Leah Lakshmi Piepzna-Samarasinha)
- Home and Hand Made (Melissa K. Norris)
- Illness as Metaphor and AIDS and Its Metaphors (Susan Sontag)
- The Illness Narratives: Suffering, Healing, and the Human Condition (Arthur Kleinman, MD)
- Medical Gaslighting: How to Get the Care You Deserve in a System that Makes You Fight for Your Life (Ilana Jacqueline)
- Natural Causes: Death, Lies and Politics in America's Vitamin and Supplement Industry (Dan Hurley)
- Neurodivergent, By Nature: Why Biodiversity Needs Neurodiversity (Joe Harkness)
- Reefer Wellness (Dr. Riley Kirk, PhD)
- Soap & Soul: A Practical Guide to Minding Your Home, Your Body, and Your Spirit with Dr. Bronner's Magic Soaps (Lisa Bronner)
- Taming the Zebra - It’s Much More than Hypermobility The Definitive Physical Therapy Guide to Managing HSD/EDS Volume 1: Systemic Involvement [Patricia J. Stott (DPT, PT, MS, ATC, CHT, CYT) and Heather Purdin (MS, PT, CMPT)]
- Unfit Parent: A Disabled Mother Challenges an Inaccessible World (Jessica Slice) (Wheelchair user due to Dysautonomia and EDS)
- What Patients Say, What Doctors Hear (Danielle Ofri, MD)
- The Wounded Storyteller: Body, Illness, and Ethics (Arthur W. Frank)
- Year of the Tiger: An Activist's Life (Alice Wong)