Providers Recommended by Chicago EDS Members
* Please keep in mind that the following providers are recommended or suggested by members of Chicago EDS, and may not work for everyone! As well, not every provider will accept insurance or specific insurance plans, so please do your research. (Links are provided in many cases for your ease.)
* Another consideration is that the wait times for some of the providers may be relatively long.
* Note to Providers: Please let us know via the contact form below if you wish to have your name/practice added or removed from this list.
Genetics:
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Dr. Brad Tinkle, Indianapolis, IN https://www.drbradtinkle.com/
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Dr. Christina Laukaitis, Urbana, IL https://carle.org/find-a-doctor/2647
Mental Health:
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Robin Seidman, MA, LCSW, Chicago, IL https://www.psychologytoday.com/us/therapists/robyn-seidman-chicago-il/65404
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Dr. Caroline Atler, Health/Rehabilitation Psychologist, Chicago, IL https://antlerclinic.com/drantler
Neurology:
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Dr. Octavia Kincaid, Rush, Chicago, IL https://doctors.rush.edu/details/19963 (Wait times for Dr. Kincaid are well into 2027 at present. - Noted 1/4/26).
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Dr. Alexandru Barboi, IU Health, Indianapolis, IN https://iuhealth.org/find-providers/provider/alexandru-c-barboi-md-3719089
Obstetrics, Gynecology, Pelvic Health:
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Dr. Frank Tu, OBGYN, Pelvic Surgeon, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/frank-tu
Pain Management (and PM & R):
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Dr. Victoria Brander, Global Health Partners, Chicago, IL https://www.globalhealthpartnersnu.com/dr-victoria-brander-md (Diagnoses EDS)
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Brandon Johnson, PA, Skokie Pain Clinic, Skokie, IL
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Dr. Goran Tubic, Chicago Pain Management, Bolingbrook & Hinsdale, IL
https://www.chicagolandpainmanagement.com/ -
Dr. David Dickerson, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/david-dickerson
Pediatricians:
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Dr. Don Seidman, Duly Health Care, Elmhurst, IL https://www.dulyhealthandcare.com/providers/don-n-seidman-md
Pharmacies:
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Care First Specialty Pharmacy, Mt. Laurel, NJ
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Keefer's Pharmacy, Arlington Heights, IL https://www.keeferspharmacy.com/
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Lakes Apothecary, Mundelein, IL https://lakesapothecary.com/
Physical Therapy and Occupational Therapy:
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Mary Kiolbasa, OT, Lincolnshire, IL
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Brynn Weimer, DPT, Chicago, IL
https://www.movementphysicaltherapy.com/brynn-weimer/ -
Tim Kosiba, DPT, PT, Lincolnshire, IL
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Sean Phelan, DPT, PT, Oak Brook, IL https://bodygears.com/our-team/sean-phelan-pt-dpt/
Vascular & Cardiology:
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Dr. Alfonso J. Tarfur, Vascular Surgeon, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/alfonso-tafur
Vision, Optometry, and Ophthamology:
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Dr. Neil Margolis, Neuro Developmental Optometrist, Visual Symptoms Treatment Center, Arlington Heights, IL https://www.visualsymptomstreatmentcenter.com/
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Dr. Michael DeStefano, Neuro Development Optometrist, Visual Sympstoms Treatment Center, Arlington Heights, IL