Providers Recommended by Chicago EDS Members
* Please keep in mind that the following providers are recommended or suggested by members of Chicago EDS, and may not work for everyone! As well, not every provider will accept insurance or specific insurance plans, so please do your research. (Links are provided in many cases for your ease.) Another consideration is that the wait times for some of the providers may be relatively long.
* Specialities are in alphabetical order, approximately. Providers are in no particular order under the heading.
*Update in progress! (7/31/2026)
* Note to Providers: Please let us know via the contact form below if you wish to have your name/practice added to or removed from this list.
Allergy/Immunology/MCAS
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Dr. Yasmeen Bilimoria, Glen Allergy & Asthma, Glenview, IL - Treats MCAS. (She is not taking new patients for MCAS evaluation at present as stated on the practice website. Does not take United Healthcare insurance. - Noted as of 7/29/2026) https://glenallergy.com/
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Dr. Cheryl A. Steiman, Northwestern, Glenview, IL nm.org/doctors/1356789176/cheryl-a-steiman-md (Dr. doesn't necessarily diagnose MCAS, but seems willing to treat for symptoms and "as if" MCAS.)
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Dr. Titus Chang, Advocate Allergy, Aurora, IL https://www.advocatehealth.com/doctors/titus-c-chang-1316988850
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Dr. Newton Li, Northwest Community Healthcare, Buffalo Grove, IL
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Dr Vivian Chou, Evanston, IL (No longer accepting new MCAS patients, as per the practice website. - 7/30/2026) https://www.ilallergyasthma.com/
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Dr. Marla Barkoff, Endocrinologist, Integrative Endo, Chicago, IL (Concierge doctor. Does not take insurance. Self Pay.) https://integrativeendo.com/
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Dr. G. Wendall Richmond, Rush, Chicago and OakBrook, IL (Note: Very kind and knowledgeable, but he is more of an immunologist specializing in rare conditions than a typical MCAS specialist. He doesn’t typically diagnose it in our population unless the person has very high tryptase levels. Instead he treats EDS patients “as if” we have MCAS.) https://doctors.rush.edu/Details/17664
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Dr. Baiju Malde, Northwestern Medicine Primary & Specialty Care - Lakeview, Chicago, IL (Note: Does not diagnose or really recognize MCAS, but does prescribe Xolair and other treatments if hives are present.) https://www.nm.org/doctors/1457338907/baiju-malde-md
Cardiology and Vascular:
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Dr. Alfonso J. Tarfur, Vascular Surgeon, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/alfonso-tafur
Dysautonomia:
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Dr. Janice Gilden, Center for Diabetes and Endocrinology, Chicago, IL
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Dr. Alexandru Barboi, Autonomic Neurology, IU Health, Indianapolis, IN (He may be currently doing mostly research.)
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Dr. Octavia Kincaid, Neurologist, Rush, Chicago and Glenview IL (Appointments for new patients may be on pause currently. If able to get an appointment with her, it may be well into 2028 at this point.)
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Ayla Gray, PA-C, Neuromuscular Medicine, Neurology, Endeavor, Glenview, IL (Works under neurologist Dr. Zeidman, who may not be taking new patients currently.
Gastroenterology and GI Surgeons:
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Dr. Andelka Losavio, Duly Healthcare, Warrenville/Lisle/Winfield, IL https://www.dulyhealthandcare.com/providers/andelka-d-losavio-md
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Dr. Meghan Barrett-Englert, Neurogastroenterologist, Rush, Chicago and Oakbrook, IL (Note: Very well informed on motility disorders and the many ways that EDS impacts the digestive system.) https://doctors.rush.edu/details/19887
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Dr. Mason Hedberg, GI Surgeon, Endeavor, Evanston and Highland Park, IL (Note: Specializes in minimally invasive GI and general surgery, and is EDS knowledgeable.) https://www.endeavorhealth.org/providers/mason-hedberg
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Dr. Joy Lui, Northwestern Medicine Digestive Health Center, Chicago, IL (Note: May understand EDS, MCAS and POTS, in relation to GI.) https://www.nm.org/doctors/1558742072/joy-j-liu-md
Genetics:
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Dr. Brad Tinkle, Indianapolis, IN https://www.drbradtinkle.com/
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Dr. Christina Laukaitis, Urbana, IL https://carle.org/find-a-doctor/2647
Gynecology, Pelvic Health, Obstetrics:
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Dr. Frank Tu, OBGYN, Pelvic Surgeon, Endeavor, Skokie, IL (Note: Endometriosis/Fibroids, Ovarian Cysts, Robotic & Computer Assisted Surgery and Pelvic Pain.) https://www.endeavorhealth.org/providers/frank-tu
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Dr. Richard Cockrum, Endeavor, Glenview, Chicago, and Skokie, IL (A surgeon specializing in endometriosis, adenomyosis and rare disorders. Knowledgeable about EDS and its comorbidities.) https://www.endeavorhealth.org/providers/richard-cockrum
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Margaret Sullivan, APN-CNP, Endeavor, Skokie and Highland Park, IL https://www.endeavorhealth.org/providers/margaret-sullivan
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Dr. Magdy Milad, Northwestern, Deerfield and Chicago, IL https://www.nm.org/doctors/1710995311/magdy-p-milad-md
Mental Health:
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Robin Seidman, MA, LCSW, Chicago, IL https://www.psychologytoday.com/us/therapists/robyn-seidman-chicago-il/65404
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Dr. Caroline Atler, Health/Rehabilitation Psychologist, Chicago, IL https://antlerclinic.com/drantler
Migraine/Headache:
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Dr. Alexander Feoktistov, Synergy Headache Clinic, Northfield, IL https://www.synergyheadache.com/
Neurology (and Dysautonomia, EDS):
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Dr. Octavia Kincaid, Rush, Chicago, IL https://doctors.rush.edu/details/19963 (Diagnoses EDS, HSD, Dysautonomias, and TOS) Wait times for Dr. Kincaid are well into 2028 at present. - Noted 7/29/26. She might not even be taking new patients currently. Now seeing some patients in Glenview one day a week.)
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Dr. Alexandru Barboi, IU Health, Indianapolis, IN https://iuhealth.org/find-providers/provider/alexandru-c-barboi-md-3719089 (Dr. Barboi may not be taking new patients at this time, either.)
Orthopedics:
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Dr. Daniel Bohl, Orthopedic Foot and Ankle Surgeon, Rush, Midwest Orthopedics at Rush https://www.danielbohl.com/
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Dr. Greg Markerian, Chicago Sports Medicine Institute https://chicagosportsmedicineinstitute.com/meet-the-doctor/
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Dr. Michael Stover, Knee/hip surgeon, Northwestern, Chicago and Oak Brook, IL https://www.nm.org/doctors/1033183363/michael-d-stover-md
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Dr. Shane Nho, Rush, Chicago, Oakbrook, IL, and Munster, IN https://www.rushortho.com/providers/shane-j-nho/
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Dr. Joel Williams, Rush, Chicago https://www.rushortho.com/providers/joel-williams/
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Dr. Jorge Chahla, Rush Oak Brook, Chicago and Naperville, IL
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Dr. Anish Kadakia, Northwestern, Chicago, IL
Pain Management (and PM & R):
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Dr. Victoria Brander, Global Health Partners at Northwestern, Chicago, IL https://www.globalhealthpartnersnu.com/dr-victoria-brander-md (Diagnoses EDS, focuses on PM & R, does not take insurance. Recommended by many over the years.)
Brandon Johnson, PA, Skokie Pain Clinic, Skokie, IL -
Dr. Goran Tubic, Chicago Pain Management, Bolingbrook & Hinsdale, IL
https://www.chicagolandpainmanagement.com/ -
Dr. David Dickerson, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/david-dickerson
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Dr. Matthew Bowersox, Endeavor, Skokie, IL https://www.endeavorhealth.org/providers/matthew-bowersox
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Dr. Ava Socik, Endeavor, Glenview and Skokie, IL https://www.endeavorhealth.org/providers/ava-socik
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Dr. Matthew P. Jaycox, Rush Pain Clinic, Chicago and Westchester, IL https://www.rushpaincenter.com/matthew-p-jaycox-md.html
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Dr. James Gruft, Pain to Wellness, Oakbrook Terrace, IL https://frompaintowellness.com/
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Dr. Keith Schmidt (and his NP Michelle), Hoffman Estates, IL https://keithschmidtmd.com/
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Dr. Kiran Chekka, Global Health Partners at Northwestern, Chicago, IL https://www.globalhealthpartnersnu.com/dr-kiran-chekka-md
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Dr. Kelly Atassi, Northwestern Global Health Partners at Northwestern, Chicago, IL https://www.globalhealthpartnersnu.com/dr-kelly-atassi
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Dr. Michael Rock, Chicago Institute for Neuropathic Pain, Chicago and Oak Park, IL https://chicagoneuropain.com
PCPs:
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Dr. Leo Hall, Loyola, Oakbrook Terrace, IL https://www.loyolamedicine.org/provider/leo-hall-md
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Dr Lisa Rosman, Rush Lakeview, Chicago, IL https://doctors.rush.edu/details/18062
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Dr. Antikaben Han, Rush, Hinsdale, IL https://doctors.rush.edu/details/17432
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Dr. Stephanie Beard, DO, Rush West Loop, Chicago, IL https://doctors.rush.edu/details/19799
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Dr. Ashley Stoecker, DO
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Dr. Jill Marcus, Rush Lincoln Park, Chicago, IL https://doctors.rush.edu/details/18207
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Dr. Bhupinder Singh, Northbrook, IL (Not EDS knowledgeable but open to learning and is nice.)
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Dr. Robert Maslo, Family Practice Physician, Advocate, Des Plaines, IL (He is not an expert on EDS yet, but he’s kind and is actively working to educate himself.) https://www.advocatehealth.com/doctors/robert-maslo-1972892677
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Dr. Yu Yan, Internist, Endeavor Health Medical Group, Arlington Heights, IL https://www.endeavorhealth.org/providers/yu-yan
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Dr. Zachary Long, Family Medicine, Endeavor/The Clark, Chicago, IL https://www.endeavorhealth.org/providers/zachary-long
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Dr. Paul A. Ravenna, Family Med, Northwestern Medicine Primary & Specialty Care, Lakeview, Chicago, IL https://www.nm.org/doctors/1124381769/paul-a-ravenna-md
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Dr. Anne C. Goodenow, MD, MPH, Northwestern Medicine Primary & Specialty Care, Chicago, IL https://www.nm.org/doctors/1093003014/anne-c-goodenow-md
Pediatricians:
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Dr. Don Seidman, Duly Health Care, Elmhurst, IL https://www.dulyhealthandcare.com/providers/don-n-seidman-md
Pharmacies:
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Care First Specialty Pharmacy, Mt. Laurel, NJ
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Keefer's Pharmacy, Arlington Heights, IL https://www.keeferspharmacy.com/
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Lakes Apothecary, Mundelein, IL https://lakesapothecary.com/
Physiatry:
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Dr. Ajum Sayyad, Marianjoy Rehabilitation Center, Wheaton, IL
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Dr. Ajith Castelino, Edgewater, Chicago, IL
Physical Therapy and Occupational Therapy:
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Mary Kiolbasa, OT, Lincolnshire, IL
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Brynn Weimer, DPT, Chicago, IL https://www.movementphysicaltherapy.com/brynn-weimer/
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Tim Kosiba, DPT, PT, Lincolnshire, IL
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Sean Phelan, DPT, PT, Oak Brook, IL https://bodygears.com/our-team/sean-phelan-pt-dpt/
Rheumatology:
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Dr. Sonali Khandelwal, Rush, Chicago, IL https://doctors.rush.edu/Details/1730
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Dr. Angelica K. Kierut, Northwestern, Warrenville, IL https://www.nm.org/doctors/1518115252/angelica-k-gierut-md
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Dr. Miriam Khan, Endeavor, Elmhurst, IL https://www.endeavorhealth.org/providers/mariam-khan
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Dr. Dawen Zhang, Endeavor, Plainfield and Naperville, IL https://www.endeavorhealth.org/providers/dawen-zhang
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Dr. Craig Smuda, MD/PhD, UChicago Medicine Advent Health Rheumatology Clinic, Bolingbrook, IL https://www.uchicagomedicine.org/find-a-physician/physician/craig-smuda
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Dr. Amanda Myers, Endeavor, Evanston and Skokie, IL (Note: Seems to diagnose and treat HSD/EDS.) https://www.endeavorhealth.org/providers/amanda-myers
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Dr. Anjali Casey, Endeavor, Glenview, IL (Recognizes and apparently diagnoses EDS. Focus on symptoms.) https://www.endeavorhealth.org/providers/anjali-casey
Vision, Optometry, Ophthamology, and Neuro-Developmental Optometry:
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Dr. Neil Margolis, Neuro Developmental Optometrist, Visual Symptoms Treatment Center, Arlington Heights, IL https://www.visualsymptomstreatmentcenter.com/
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Dr. Michael DeStefano, Neuro Development Optometrist, Visual Sympstoms Treatment Center, Arlington Heights, IL (see link immediately above.)